PCOS Research at Northwestern

If you are interested in participating, please contact us:

Phone: 800-847-6060

Email: pcos@northwestern.edu

Website: www.pcos.northwestern.edu

Northwestern University is currently recruiting women, men, and girls from the ages of 8-12 for our research on PCOS.  We are also recruiting pregnant women and women with children under 5.  The purpose of these studies is to better understand the cause of PCOS and the problems associated with it.  Since PCOS runs in families, we are also trying to better understand how PCOS affects family members, and to determine if there is a way to predict if a girl will get PCOS later in life.

• Women (18 to 55 years old)
• Men (18 to 55 years old)
• Girls (8 to 12 years old)
• Pregnant Women and Women with Children 0-5 years old

Studies for Women:

Study #1: Genome Wide Association Study (GWAS) (NMH eIRB #8096)

• We are recruiting women of any age with a diagnosis of PCOS or pre-menopausal women who have symptoms of PCOS.
• Women with a diagnosis of PCOS may participate even if you are taking medicine or birth control pills.
• This study involves a single blood draw, which may be done at a lab close to you.
• Compensation: If you have a previous diagnosis of PCOS, you may be compensated $25 for the single blood draw.

Study #2: SCOR: Androgens, Genotype and Insulin resistance in PCOS (NMH eIRB #13763)

• We are recruiting overweight women 18-40 years old, with regular periods or irregular periods or PCOS who are generally in good health and are not taking birth control pills.
• Even if you are taking birth control pills there may be a way to include you in this study, so please contact us if you are interested in participating.
• The study requires between 1 and 10 visits over the course of 1 to 12 months depending on your schedule and interest in participating.
• The study involves blood testing, an MRI and a DEXA scan.
• If you choose to participate in the second part of the study you may be asked to take FDA-approved medications for study purposes.
• Compensation: up to $5200

Study #3: Metabolic Syndrome in PCOS: Precursors and Interventions (NMH eIRB #8004)

• We are recruiting women with PCOS (or who have irregular periods) between the ages of 18 and 35 who are generally in good health and are not taking birth control pills.
• Even if you are taking birth control pills there may be a way to include you in this study, so please contact us if you are interested in participating.
• The study requires 7 visits over the course of 6 months.
• Participants in this study will be on one of three different FDA-approved medications to help treat PCOS.
• Participants will receive a personalized, dietician supervised weight loss program at no charge as part of the study.
• The study involves blood testing, an MRI and a DEXA scan.
• Compensation: $725

Study #4: Neural Network Dysfunction in Polycystic Ovary Syndrome (NMH eIRB #12400)

• We are recruiting normal weight and overweight women who have regular periods and overweight women with PCOS (or who have irregular periods) who are in generally good health and are not taking birth control pills.
• Even if you are taking birth control pills there may be a way to include you in this study, so please contact us if you are interested in participating.
• The study requires between 1 and 3 visits over the course of 3 weeks depending on your interest in participating.
• Each visit involves a single blood draw and MRI.
• If you choose to participate in the second part of the study you will be asked to take FDA-approved medications for study purposes for one to three weeks.
• Compensation: up to $900

Studies for Men:

Study #1: SCOR: Androgens, Genotype and Insulin resistance in PCOS (NMH eIRB #13763)

• We are recruiting men who are brothers of women with PCOS, and men whose sisters do not have PCOS.  All participants will be in generally good health.
• The study requires 2 or 3 visits within a 2 week period.
• The study involves 2 blood tests and an MRI scan.
• Compensation: $800

Studies for Girls:

Study #1: Metabolic Syndrome in PCOS: Precursors and Interventions (NMH eIRB #8007, CMH IRB #2005-12695)

• We are recruiting 8-12 year old overweight girls who have not yet had their first period.  Girls may be daughters or sisters of women with PCOS (or who have irregular periods), or may have no relative with PCOS.
• The study requires 1 or 2 visits within a week period depending on your interest in participating.
• The study involves a blood test, and may also include another blood test and an MRI depending on your interest in participating.
• Compensation: up to $225

Studies for Pregnant Women and Women with Children 0-5 years old:

Study #1: PCOS Registry – Child (NMH eIRB #8006, CMH IRB #2006-12785)

• We are recruiting women with and without PCOS who have children between 0-5 years old.
• The study is non-invasive, and would require you to send wet diapers and growth charts to us.
• Compensation: $50 per set of diapers and growth chart

will be interviewed by Sasha Ottey of PCOS Challenge.

Here’s the announcement! Please call in and ask a question!

I’ll admit this…the first issue was short. This next issue (which will be out shortly) will be longer. To keep up with this trend, here at PCOS Magazine, we need help! I don’t like short, and I know you, as readers, like more pages and more content. Who doesn’t?

Do you have a background in journalism? Do you like to write? Do you have a unique story idea that you’d like to develop into a story and then contribute? If so, then we want to hear it!

Also, more advertisers means more premium content. We need advertising sales gurus who are willing to work on commission (at least staring out) to help PCOS Magazine add more advertisers to its repertoire. You have the background? Contact the editor!

More details about the next issue will follow in the next few weeks too. I will also be adding a “community” page shortly. Check back to the new site soon for more information about subscribing, either to a digital/virtual version of the magazine, or a hard-copy. This is exciting stuff, folks!

Fairhaven Health specializes in natural fertility, pregnancy and nursing products. They offer a combination of both OTC pharmaceutical supplements and non-pharmaceutical fertility and conception aids for women. They feature a number of reviews on their site from women whose doctors suggested the use of their products during the pre-natal periods.

For the sake of my review, I asked to see products of the non-pharmaceutical sort.

Pregnancy Wheel and Ovulation Calendar

For those of you women who like to take a natural approach to conception, they’ve got some really great products to choose from. For instance, I’m a rather analytical type. I like to be able to know exactly when something’s happening, or at least to be able to predict it. For those of us with PCOS, also knowing when ovulation *could* occur is a good thing. Fairhaven has produced a Pregnancy Wheel and Ovulation Calendar that spoke right to my analytical side. It allows you to adjust the wheel to your cycle length, to pinpoint when you are menstruating, when you might ovulate, and then helps you track the different phases of pregnancy. In taking a good, strong look at this wheel, I noticed it also pointed out when amniocentesis, ultrasounds, and glucose screens should be done during the pregnancy cycle. Hey, Fairhaven, can you produce one of these for my LIFE? On the back of the wheel are numerous preconception calendar tips. A great little resource!

Next up, what especially caught my interest was their yoga DVD. I used to be an intermediate yoga practitioner; it’s something that I want (and SHOULD) get back into, so anything that deals with yoga catches my interest. Their yoga DVD is entitled “Bend, Breathe, and Conceive: Fertility Yoga,” and it was produced with Anna Davis, Ph.D., RYT. Its focus is on what’s called gentle flow yoga, with guided meditation, for all levels of yoga practitioners. As a yoga practitioner, I knew about how yoga helps release toxins from the body (this is why I used to always take a big bottle of water to every yoga session I went to…so immediately following I could gulp  like it was going out of style. If I didn’t, I’d feel horrible until this stuff was flushed out). On the back of the DVD are a few great little

Bend, Breathe and Conceive DVD

kernels of information about the connections between stress and fertility. They’re a little hard to read due to the background color, but good information. The one that caught my eye, and even made me think about how stress affects my body, was “learn how daily anxieties and ‘fertility frustration’ can trigger the release of stress hormones that disrupt the health functioning of the reproductive system.” QUICK — where’s my yoga mat?

I also took a sniff (yes, a sniff) at their Fertile Flame Fertility Candle. While I’m not typically one to get really excited about aromatherapy, I have been known

Fertile Flame Fertility Candle

to seek the benefits of anything peppermint to perk me up, apples and cinnamon during the colder months to soothe me, so on and so forth. Fairhaven’s Fertile Flame is said to combine fertility-enhancing scents with the ritual of lighting candles to improve emotional and mental well-being. As frazzled as we can become from our crazy lives, something that helps you center is always welcome. The candle is a combination of three scents — chamomile, jasmine, and ylang ylang. It’s potent, but soothing, made of soy wax, in its own container. Don’t be concerned if your candle arrives and there are a few small chips of wax on the top of it. This will happen in transport. You haven’t lost much.

Fairhaven Health has a plethora of natural products that I’d be willing to try if I were in the process of trying to conceive. The company, its website, everything about it, isn’t pushy, but offers you the fullest opportunity to be present and an active part of the conception process. Their combination of both non-pharmaceutical conception aids (like specially made basal thermometers) and pregnancy and post-pregnancy items (like Dreambelly Stretch Mark Cream, Pregnancy Deoderant, and Nursing Time Tea) as well as their supplements (like Pregnancy Plus Omega-3) is refreshing. I invite you to take a look. Most of their prices seem fairly reasonable, they offer a supplement ingredient list under the “Physicians” tab of their website, and provide information about the medical advisors that work with the company in the production of their products. Nothing about this company sent up any red flags for me. They’ve put it all out there to prove to their current and potential customers that they’re here to meet your needs.

The PCOS Today blog is migrating to it’s new home with PCOS Magazine (formerly PCOS Today Magazine). The new blog, which contains the same posts you’ve come to love here at the PCOS Today blog, can be found here.

The new PCOS Magazine site, as a whole, will be uploaded in the next few days!

So, come join us. Take a look at the new blog. Please read the new post (called “Thinking” about PCOS Magazine) and provide your commentary!

I look forward to seeing you there! — Linda

However, I was dx’d with PCOS something like seven (7) years ago. It has permeated my life for so long, and as so much, that I wonder if I need to expand my horizons. Perhaps I’ve become brored with the topic because I haven’t seen much change in my experience with the disorder in a rather long time. My fiance even mentioned that he wondered if focusing JUST on PCOS was creating too much of a niche and pigeon-holing me as a publisher. I am still (intermittantly) writing my teen-focused PCOS book (I need to get that done), though. Maybe I need to think broader and into different mediums. Should I work on the PCOS wiki (I established it but haven’t done a darn thing on it), look into social media a LOT more?

As I’ve discussed in this blog before, I do not intend to have children. I have two nephews and a niece whom I love to pieces and am happy to dote on. Someday, my fiance and I plan to get a cat or a dog (or multiples thereof), and these furry creatures of mischief will become our “children.” So the infertility issues of PCOS, I can heartedly say, don’t interest me that much. However, I wonder if my publishing focus should expand to one of “chronic reproductive illness,” of which, yes, infertility is included. 

As an academic (when I’m not focused on PCOS and whatnot, I teach college students about communication), I’ve started to focus on health education and promotion, and I have a definite interest in looking at PCOS and how its communicated. I think I need to find a way to tie the two together…my academic interests and my extra-curricular ‘publishing’ interests. I need input.

Obvious within just the first few chapters, this book provides a very comprehensive, and more importantly, very personal perspective on the mental, emotional and physical issues of infertility. Ms. Konecna takes both the psychological approach while regularly inserting bits and pieces of folklore about children, childlessness, and the such. “The Quest for a Child” also reads rather sequentially. Meaning, “the quest” is presented in an almost chronological format, from the beginning of a journey into infertility, through the outcomes of either pregnancy or childlessness, adding credibility throughout from both the female and male perspectives. And not only is the professional perspective presented, but tons of short but compelling commentary from those who gone through the infertility experience is provided (in statement and case study forms).

I think both couples facing the issues of infertility, as well as the professionals who work with those couples, will benefit greatly from this book. Those with PCOS, especially, understand how neglected the emotional side of infertility and hormonal disorder continue to be. Konecna’s “The Quest” breaks this barrier and, I hope, will start some very frank consideration by medical and similar professionals about the entire mind-body-spirit focus there should be on infertility (IMHO). Those who are dealing with infertility — well, I think these readers will discover a bit of anonymous support through this book; a feeling as-if “I’m not alone.”

Overall, the comprehensiveness of the book makes it a solid read. I believe there could be more breadth and depth to the author’s discussions about the CHOICE of childlessness. Then again, that may be just because that’s where my mind has been lately (see my earlier post about my choice not to seek pregnancy). All-in-all, I think Anshan Publishers UK has hit the proverbial home run on their publishing of this tome, and I see Konecna’s book being relevant for decades to come.