PCOS Magazine

I’ve been amazed as-of late at the sheer amount of attention PCOS is receiving on Facebook…and the number of fans of PCOS Magazine. I want to say thank you SO much for your continued interest.

As this magazine is a personal passion, fed by the wonderful writing and perspectives of some absolutely FABULOUS contributing writers (Angela Grassi, Holly Amarandei, Suzy Reyes, Sasha Ottey, and more)…well, let me just say this, it takes a lot of work to produce. I’m not complaining one bit. That’s the thing about it being a passion.

This said, life has thrown a couple of curveballs lately and it’s made it hard to concentrate on the magazine. I’m a little late getting the latest issue out to everyone, and I want to apologize for that. The upcoming issue will be out soon, most likely before May 1, and I promise to you that it will provide a great deal of great information!

PCOS Magazine is a group effort, essentially. We are always looking for new writing talent/voices, people who have design or ad sales experience, and more. If you have a talent, the readers of PCOS Magazine will probably benefit from it. Please let us know how you would like to get involved.

Dr. Andrea Dunaif leads Endocrinology, and more importantly, the PCOS Study at Northwestern University. The PCOS Study is looking for more participants (see the ad to the right). More information about Dr. Dunaif’s various ongoing studies is detailed below.

PCOS Research at Northwestern

If you are interested in participating, please contact us:

Phone: 800-847-6060

Email: pcos@northwestern.edu

Website: www.pcos.northwestern.edu

Northwestern University is currently recruiting women, men, and girls from the ages of 8-12 for our research on PCOS.  We are also recruiting pregnant women and women with children under 5.  The purpose of these studies is to better understand the cause of PCOS and the problems associated with it.  Since PCOS runs in families, we are also trying to better understand how PCOS affects family members, and to determine if there is a way to predict if a girl will get PCOS later in life.

• Women (18 to 55 years old)
• Men (18 to 55 years old)
• Girls (8 to 12 years old)
• Pregnant Women and Women with Children 0-5 years old

Studies for Women:

Study #1: Genome Wide Association Study (GWAS) (NMH eIRB #8096)

• We are recruiting women of any age with a diagnosis of PCOS or pre-menopausal women who have symptoms of PCOS.
• Women with a diagnosis of PCOS may participate even if you are taking medicine or birth control pills.
• This study involves a single blood draw, which may be done at a lab close to you.
• Compensation: If you have a previous diagnosis of PCOS, you may be compensated $25 for the single blood draw.

Study #2: SCOR: Androgens, Genotype and Insulin resistance in PCOS (NMH eIRB #13763)

• We are recruiting overweight women 18-40 years old, with regular periods or irregular periods or PCOS who are generally in good health and are not taking birth control pills.
• Even if you are taking birth control pills there may be a way to include you in this study, so please contact us if you are interested in participating.
• The study requires between 1 and 10 visits over the course of 1 to 12 months depending on your schedule and interest in participating.
• The study involves blood testing, an MRI and a DEXA scan.
• If you choose to participate in the second part of the study you may be asked to take FDA-approved medications for study purposes.
• Compensation: up to $5200

Study #3: Metabolic Syndrome in PCOS: Precursors and Interventions (NMH eIRB #8004)

• We are recruiting women with PCOS (or who have irregular periods) between the ages of 18 and 35 who are generally in good health and are not taking birth control pills.
• Even if you are taking birth control pills there may be a way to include you in this study, so please contact us if you are interested in participating.
• The study requires 7 visits over the course of 6 months.
• Participants in this study will be on one of three different FDA-approved medications to help treat PCOS.
• Participants will receive a personalized, dietician supervised weight loss program at no charge as part of the study.
• The study involves blood testing, an MRI and a DEXA scan.
• Compensation: $725

Study #4: Neural Network Dysfunction in Polycystic Ovary Syndrome (NMH eIRB #12400)

• We are recruiting normal weight and overweight women who have regular periods and overweight women with PCOS (or who have irregular periods) who are in generally good health and are not taking birth control pills.
• Even if you are taking birth control pills there may be a way to include you in this study, so please contact us if you are interested in participating.
• The study requires between 1 and 3 visits over the course of 3 weeks depending on your interest in participating.
• Each visit involves a single blood draw and MRI.
• If you choose to participate in the second part of the study you will be asked to take FDA-approved medications for study purposes for one to three weeks.
• Compensation: up to $900

Studies for Men:

Study #1: SCOR: Androgens, Genotype and Insulin resistance in PCOS (NMH eIRB #13763)

• We are recruiting men who are brothers of women with PCOS, and men whose sisters do not have PCOS.  All participants will be in generally good health.
• The study requires 2 or 3 visits within a 2 week period.
• The study involves 2 blood tests and an MRI scan.
• Compensation: $800

Studies for Girls:

Study #1: Metabolic Syndrome in PCOS: Precursors and Interventions (NMH eIRB #8007, CMH IRB #2005-12695)

• We are recruiting 8-12 year old overweight girls who have not yet had their first period.  Girls may be daughters or sisters of women with PCOS (or who have irregular periods), or may have no relative with PCOS.
• The study requires 1 or 2 visits within a week period depending on your interest in participating.
• The study involves a blood test, and may also include another blood test and an MRI depending on your interest in participating.
• Compensation: up to $225

Studies for Pregnant Women and Women with Children 0-5 years old:

Study #1: PCOS Registry – Child (NMH eIRB #8006, CMH IRB #2006-12785)

• We are recruiting women with and without PCOS who have children between 0-5 years old.
• The study is non-invasive, and would require you to send wet diapers and growth charts to us.
• Compensation: $50 per set of diapers and growth chart

Tomorrow night, Wednesday, Dec. 16, PCOS Magazine Editor/Publisher Linda Harvey

will be interviewed by Sasha Ottey of PCOS Challenge.

Here’s the announcement! Please call in and ask a question!

PCOS Magazine invites its readers to visit the new FREE-TO-READ version of the entire magazine. Using the great online-magazine technology created by Issuu, PCOS Magazine readers can find the latest issues in a number of different locales: The PCOS Magazine blog; the PCOS Magazine homepage; or at Issuu! While you’re there, subscribe! You’ll be the first to know anytime a new issue is posted!

Sitting at lunch yesterday, reading a chapter on blogging in “The New Rules of Marketing and PR,” I realized I have been rather reticent to blog about my experiences with polycystic ovarian syndrome. It hit me like a brick wall — the big “WHY?” It makes no sense, as I publish a magazine all about PCOS, have spoke to newspapers, conferences, and the like about my experiences with the syndrome, and yet it’s taken me until NOW to finally start a blog. Perhaps it’s laziness. But as I’m snarfing down my chicken fried steak, I realized there were so many things I can speak to regarding PCOS that I can’t necessary discuss in the forums I’ve mentioned. DUH! These moments of clarity are always a bit astounding to me.

Since this is the, ahem, inaugural post, I can’t help but make the usual marketing pitch about the blog’s posts, which I’m sure will keep you raptly captivated…(got the hipwaders out yet)? Seriously, I hope and invite you to return to this blog on a regular basis. PLEASE offer your RELEVANT commentary. I plan to speak to everything from my personal experiences with PCOS to how both the medical community as well as various markets seem to be missing the mark on working with and serving the needs of the PCOS patient (as well as their loved ones, friends, colleagues, etc.).